Having privacy and a place to call home is Elaine’s dream.She feels she is getting closer to that dream since she moved into her refurbished studio flat in Brixton in September 2015.
“It’s ok, I like it, it’s helping me to become more independent and I’ll be here for about 18 months. I’ve got no complaints, ” says Elaine, casting her eyes around the cosy, fresh environs of her new home.
“It’s another section of my life for now until they find me somewhere permanent … I would like to have a house with a garden.”
In a corner of the flat stands a delicate orchid in a vase that’s been shedding its leaves, “take a picture of that, says Elaine, when I ask how I might capture her living space … ” it’s about life and death, that’s it, living and dying”.
It feels like an appropriate symbol in a milestone journey towards independence that has seen Elaine, 53 , move from a care home for the elderly and a residential home for those needing support with alcohol problems. Over the years she has suffered serious physical health conditions and lost her home in Waterloo after she was made the subject of a Court of Protection Order in relation to her property and affairs (appointeeship). Her tenancy was terminated by the court and Elaine moved to the residential home that she shared with four other women in 2011.
“There were workers there 24 hours and I would have liked more privacy and wanted to live on my own,” she says. “We were only allowed to go out for four hours a day…”
Elaine, who has been diagnosed with schizophrenia says the problems started as she faced being homeless. “It was hard to let property and I was threatened with eviction. ” She often found herself seeking support from Waterloo Action Centre, who were “helpful and got a law centre to help”.
Elaine’s is a complex story and she doesn’t want to dwell on what she calls “the sorrows”; in a more traditional way of working it would be likely that she would remain in a residential setting. But her chance to move on has been made possible as part of an innovative Lambeth Living Well Collaborative (the Collaborative) initiative. This is helping people with long-term mental health issues to live more independently in the community. The Integrated Personalised Support Alliance (IPSA) brings together voluntary organisations Thames Reach and Certitude, South London and Maudsley NHS Foundation Trust (SLaM) Lambeth Clinical Commissioning Group (CCG) and Lambeth Council.
IPSA also functions as an alliance agreement between the five organisations, a relatively new approach to contract commissioning in the health and care sector.
What’s on offer to Elaine is a personalised package to support her recovery, which includes her housing, a personal budget and appropriate care and support – the aim to deliver the Collaborative’s Big 3 Outcomes for people accessing services –
To recover and stay well
To make their own choices
Participate on an equal footing in daily life
In addition to meeting these outcomes for improved quality of life for people, IPSA also aims to deliver 23 per cent savings (around £2.8) against the current budget of just over £12m, by the end of year 2.
In practice that means a dedicated multi-disciplinary team, that puts the individual and their assets at its heart. And the new way of working has come with both challenges and rewards.
For Elaine’s social worker Mohammed Faruque, who has been working with her for about two years and knows her vulnerabilities, one of the biggest challenges has been to overcome the concerns from the clinical colleagues who were “warning me about the risks Elaine posed in the past with regards to her alcohol consumption and relapse” .
“The way I work with Elaine now differs in many ways to how I used to work in the community mental health team setting,” adds Mohammed, who is part of the Alliance Rehabilitation Team (ART).
The IPSA principles give more autonomy and a personalised approach, he says, while change is also reflected in recent practice governed by the Care Act 2014, instead of the previous Community Care Act 1990.
“In this role my main objective is to facilitate my clients to come out of the stigma of residential care to more independent living with a personalised and holistic approach of care.
“The rewards are that Elaine has more independence in her life. She is happier than before and I as her Social Worker feel proud for her achievement.”
These sentiments are echoed by Lauralee Price, ART Support Worker, whose role it is to link into residential services to help people step down to semi-independence. “We have got quite a long way in a short space of time,” says Lauralee, who is seconded to IPSA from Thames Reach, where she has been a support worker for nine years (working with those who are homeless, have mental health and drugs and alcohol issues).
“Elaine is very determined once she sets her mind to something, it’s about the right support at the right time.”
This includes supporting her in the community and to get through a TRaVEL (Thames Reach Volunteering and Employment for Life) course, based at the Employment Academy in Camberwell.
Elaine is impressed. “I thought it was very good and reminded me of when I was at Manpower Services, where I trained as a punchcard operator,” she says. “The certificate made me feel reassured, shows my abilities, skills and tolerance.”
She has also been supported to join Mosaic Clubhouse, business & admin unit where she hopes to get to grips with computers. “I also hope to go on a course at the library.”
Probably the biggest challenge is the finances and Laurelee helped to access some grant money to get Elaine a computer.
Elaine continues with her appointeeship through Lambeth council’s client affairs team. “I cash in £70 a week,” she says. While this covers laundry and shopping, she says she doesn’t have the money to go out… and is negotiating for an increase.
“I am outgoing and like to enjoy myself, I like going to the South Bank and would like to be able to go to the theatre and to the gym. It felt strange at first to go out again… it still feels strange because I was isolated. I go to visit my mum every fortnight in Southall and enjoy my visits. I say hello and have a quick chat to the people who live here.
“I like to cook (speciality spaghetti bolognese) and I look forward to seeing my friend who visits every week.”
The day to day running of the nine, fully-furnished, self- contained studio flats (owned by Certitude) and wellbeing of clients is overseen by Natasa Kyvetou Interim IPSA Cluster Manager – Healthy Living Team Leader. Natasa explains that people are coming from places or wards where they have had more support and less flexibility. “The support offered is flexible and will be adjusted to each person’s needs as well as the area and skills they will need support on so they can improve their independence and day to day living,” she says.
“The night staff is responsible to check that everyone has taken their evening medication and keep an eye that everyone is well and safe.”
Elaine appreciates that, for now, there is someone to keep an eye on her safety.
“I think they are trying their best and doing their best,” she says of the people who support her. “It feels much better, I don’t feel so stuffed up, I feel freer. ”
While Elaine acknowledges there have been hard times, she points out wryly, “I never lost my mind… I feel that I had to have courage and I was patient with all the activities.”
“Now I’m back to civilisation I would like to get a job, I worked all the time from when I left school until I was nearly 30. Now, I’m partly settled I hope my future looks bright and fulfilling…. with a chance.”
Facts and figures
Since it was launched in April 2015
36 people have been supported to move out of rehabilitation wards and care homes (the initiative is focused on 200 people in long-term care settings)
32 new people have found more community focused resources
IPSA also offers
The BRiL (Brokerage & Resettlement in Lambeth) project – 20 studio and one-bed flats, which have been bought on the open market by Thames Reach. Tenants will be given choice on where they live in the borough, maximising on access and support to community networks, meaningful activities and volunteering and job opportunities.
The Turrets – a supported living scheme for seven people, with intensive input (rehabilitation model) from support staff available 24 hours and clinicians on site.